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Lexi Worth
- Jul 14, 2022
- 5 min
Round 2
Getting to my round two of chemo was similar to a shit show. We were rescheduled TWICE. First time because my counts were just right on...
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Lexi Worth
- Jun 22, 2022
- 4 min
Port Placement & More Disappointing News
Tuesday June 21st we headed back to Chicago with the plan of blood draw, meet with the docs, get my port placed, then to be admitted for...
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Lexi Worth
- Jun 15, 2022
- 7 min
I'm living a really long book filled with a lot of sad stories.
I am starting to believe we are in some way cursed. We try very, very hard to live a simple and comfortable life. To still find joy in...
1,753 views4 comments
Lexi Worth
- Aug 30, 2021
- 4 min
We survived year one. 8-30-21
It has been 365 days since D-Day. The longest but shortest year of our lives. The days (and nights) are ever so long I sometimes don't...
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Lexi Worth
- Aug 25, 2021
- 1 min
Spirit of the Wind- December 2020
In the Spring of 2020 I came across this old little pony that was available for rescue close to us and I would check up on her every few...
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Lexi Worth
- Aug 25, 2021
- 1 min
All The Kind People- December 2020
In December it was our first Christmas handling MLD and then COVID on top of it, so we didn't do our typical traditions which I was...
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Lexi Worth
- Aug 25, 2021
- 1 min
Fun Run! November 2020
Our second benefit for Axel was in the same month but back home! Mine and Colby's high school teachers put together a fun run for our...
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Lexi Worth
- Aug 25, 2021
- 1 min
Car-Show Benefit- November 2020
In November a family member was able to host the first benefit for Axel, a car-show in Florida! Luckily it was close to more family who...
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Lexi Worth
- Aug 19, 2021
- 1 min
So. Many. Appointments.- October 2020
Once we hit October, we were about a full month into living with our diagnosis. I was making 2-3 trips to Peoria a WEEK (45 minute drive)...
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Lexi Worth
- Aug 19, 2021
- 1 min
Tats For Ax- October 2020
TATS FOR AXE! Not many 3 year olds get to celebrate their birthday at a tattoo shop.. but not every 3 year old is Axel. In honor of Ax we...
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Lexi Worth
- Aug 19, 2021
- 1 min
Axel's 3rd Birthday- October 2020
I am catching up on blogs from almost a year ago- here is to start! Axel's 3rd birthday party was hard. It was the first big gathering we...
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Lexi Worth
- Aug 19, 2021
- 3 min
Adjusting To Our New Normal- October 2020
Honestly, what is normal for us anymore? Nothing in our world seems right and things are definitely not fun. Before it was jumping into...
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Lexi Worth
- Apr 22, 2021
- 5 min
Pittsburgh Round One- September 2020
Our trip to UPMC Children's Hospital of Pittsburgh was.. something else. I've been kind of avoiding writing about it because it was all...
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Lexi Worth
- Apr 22, 2021
- 3 min
G-Tube Surgery- September 2020
FINALLY! It's surgery day. We have been trying for about a week and a half to move up the date for this surgery due to the fact that Axel...
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Lexi Worth
- Apr 22, 2021
- 3 min
The week or so after the Diagnosis- September 2020
The following week was probably the hardest this far, trying to figure out how to cope with this news, answer questions, make the...
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Lexi Worth
- Apr 22, 2021
- 2 min
The Diagnosis- August 2020
After our quick visit at home were back in the hospital. As soon as getting comfy in our room; and I mean real comfy we came prepared...
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Lexi Worth
- Apr 22, 2021
- 4 min
The First Hospital Visit @ Peoria Children's Hospital- August 2020
The day after our evaluation with Early Intervention Axel's P.T. calls us about 2pm. She said she had been on the phone all morning with...
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Lexi Worth
- Apr 22, 2021
- 4 min
Axel's Story; The Beginning
Here is a little background on how all this chaos became our life; A little after Axel turned one year old he began walking independently...
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