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RESOURCES FOR MLD FAMILIES

It is not easy to find resources regarding a rare genetic disease.
This page will help connect rare families to good resources regarding Metachromatic Leukodystrophy, easily.
All of these resources have helped our family tremendously.

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CUREMLD

CureMLD was an amazing first step for our family. They sent us a care package when we were first diagnosed and reached out to us immediately. They have an amazing list of MLD specialized hospitals and a ton of support links.

UNITED LEUKODYSTROPHY FOUNDATION

ULF has an amazing resouces tab that lists many foundations that are willing to help with costs such as medicaion, travel, equipment, etc.

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MLDFOUNDATION

MLD Foundation is great for connecting families and answering any questions you may have. They have a great list of MLD experts and experienced physicians as well as tons of other resources.

FOUNDATIONS & COMPANIES THAT HAVE
HELPED US ALONG OUR JOURNEY

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The Jackson Project

P-Pod Chair at no cost to us!

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Aeroflow

Urology

Diapers covered by Medicaid

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Cerner Charitable Foundation

Funds therapies insurance won't.

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